Hidradenitis Suppurativa and Depression
I know that I haven’t written in a while, and trust me that is not because I havent had any flair ups, it’s because I found that I get really depressed about the whole situation. I mean I am 34 years old with a condition that no one seems to know anything about.
I am in pain most of the time from these boil-like abcesses, I feel gross and unattractive. I have to be so careful who I let into my world, beacuse you never know who is going to try to understand and who is just going to think the worst of my situtation.
I am one of the lucky ones to have found a life partner that not only tries to understand what I am going through, but takes care of me when it gets to the point that I can’t take care of myself. I am finding that I am getting more depressed then I ever have before, and it always seemed to be around the time that I have major Hidradenitis Suppurative issues.
I haven’t had to deal with depression a lot so this is pretty new to me. If there is anyone out there that is dealing with depression because of this horrible condition, please comment below, I would like to know that I am not alone out here.
Hello! My name is Molly i’ve had HS for about 7 years now and it’s gone from bad to worse, i’m in so much pain lately i cant do anything, go anywhere it’s taking over my life. I used to see tons of doctors and got “There is nothing I can do for you” so i’m stuck, I’ve battled depression since I’m 12 but it’s gotten so much worse. I have so many scars I hate looking at myself in the mirror. I feel like i’m deformed and will never find a guy that will ever understand or accept it. I’ve felt alone for the past 7 years.
Molly, I truly understand what you are going through. I have tried everything to make this horrible thing go away. It’s hard to deal with and it’s hard to talk about with people that really don’t understand what is happening to your body. They can’t understand that everyday, all day some part of your body hurts. And that you have a constant worry every moment of every day. So tell me something, what have you tried? If you are interested I have a lot of tricks to make my life easier. Some things I can’t do anything about, like the scars, But anything I can do to help, I’m here. I am more then willing to talk to you about it. Molly Please don’t feel alone and try not to be scared, believe it or not there are a lot of us out here and we are ready to get help. I know that you don’t know me. But I have been going through this along time and I want to help in anyway possible.
Thank you so much and try to keep your head up.
Tamikka
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i was diagnosed with this ‘curse’ earlier this year after it being misdiagnosed for folliculitis for a few years. i have two small children which makes me even more depressed and angry, because sometimes i cant tend to their needs as i should. i am no longer able to work, but i was blessed with a partner who supports me in every apect of the work(we were together before the symptoms appeared);however, sometimes i still feel alone, unnapreciated, and a bit like a hypochondriac because im always in pain. i need ylenol or advil pm just for sleep because neither releive the pain really, tylenol 3 helps but my dr. wont prescribe it and i suffer from migraines since i was 4 so i feel helpless… hence, you are NOT alone. all i can say is God wont put a selected few through this weird mess unless He something great in store(I pray)
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I actually have HS and enjoyed this blog and the commentary until a bunch of people jumped in and started telling my how to make money. I think it is completly disrespectful for these people to pipe up when those of us with the disease are talking about depression. I too suffers from severe depression. It’s important to remember you are not alone. Keep bloging and visiting sites where we can talk. Our loved ones may or may not try to understand or listen, but we do have eachother. That’s what helps me through my sleepless nights.
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